NIH Thwarting Research on Chronic Fatigue Syndrome

NIH Thwarting Research on Chronic Fatigue Syndrome
AP Photo/Susan Walsh

When I first developed myalgic encephalomyelitis in 1994, I had no idea that I would be just as sick 25 years later, or that there would still be limited scientific understanding of the disease and no effective treatments. Nor did I imagine that my career as a lawyer was over, and that I would instead become an advocate for myself and others with ME (sometimes misleadingly called chronic fatigue syndrome, and referred to as ME/CFS by U.S. federal agencies).

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