April 22, 2013
Experimental Drug Saves Child w/ No Bones
Tom Wilemon, The Tennessean
Nurses didn’t know a breakthrough drug was on the horizon when they dressed the tiny little girl in a pink outfit for a hospital photographer to take her picture.
It was a photograph for her parents — an image of solace so they could remember Janelly Martinez-Amador free of tubes. Doctors told them then there was nothing more they could do for a child without bones.
TAGGED: Hypophosphatasia, Experimental Drug, Enzymes, Bones