April 22, 2013

Experimental Drug Saves Child w/ No Bones

Tom Wilemon, The Tennessean

AP Photo

Nurses didn’t know a breakthrough drug was on the horizon when they dressed the tiny little girl in a pink outfit for a hospital photographer to take her picture.

It was a photograph for her parents — an image of solace so they could remember Janelly Martinez-Amador free of tubes. Doctors told them then there was nothing more they could do for a child without bones.

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TAGGED: Hypophosphatasia, Experimental Drug, Enzymes, Bones


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